The Endurance Trust

fightPLGA

Dear Endurance Trust Friends,

In March of 2004, our three year old daughter, Samantha, was diagnosed with a brain tumor known as “Juvenile Pilocytic Astrocytoma (JPA).” This is a tumor in the Pediatric Low Grade Astrocytoma (PLGA) family for which there is no known cure or easy treatment plan despite the fact that it is the most common form of solid tumor deaths in children.

The diagnosis was devastating enough. Then we learned that a perpetual lack of funding in the cancer research field for these tumors severely dampened researcher interest in the disease. Existing treatment options are bleak. With no cure available and no new research in the pipeline, our hopes and dreams for our little girl, and thousands like her, were grim.

It is for this sole purpose that we created the Pediatric Low Grade Astrocytoma Foundation – FightPLGA. Our mission is simple: to raise funds dedicated exclusively to PLGA research. We hope to find gentler, less poisonous, and less invasive treatments that will lead to a cure for children suffering from these brain tumors within the next five years.

In May of 2006, over 25 researchers from around the world attended the first-ever scientific workshop committed entirely to JPAs and related tumors. Since then, we have funded 10 focused research grants as well as the creation of a multi-year Pediatric Low Grade Astrocytoma program through the Dana Farber Cancer Institute – a leading cancer research center – focused on this disease.

In early 2007, our friends at The Endurance Trust reached out to us with Ben’s Story, an 8 year old boy, fighting JPA, much like my daughter. Joining with Ben’s family and doctors, Endurance Trust, wants to help change the course of this disease and help enable Ben to live a ‘normal’ childhood. These friends will not only be raising funds for cutting-edge PLGA/JPA research but will also help increase awarenessof PLGA, an ‘orphan disease’ through some extraordinary efforts in races around the world.

While we have successfully leveraged time, energy, and money to achieve great things, there is still much more to do. Put simply, we are in a race against time to fund cutting-edge research that will lead to new treatment alternatives for all children suffering from PLGA.

Please support Endurance Trust in their efforts to help our kids – as they race, they join us in our race for a cure and our children’s race against time.

With funds there will be research. With research there will be a solution. With a solution our children can once again fight for their dreams instead of their lives.

With hope,

Andrew Janower
President

fightPLGA


	Dear Endurance Trust Friends, In March of 2004, our three year old daughter, Samantha, was diagnosed with a brain tumor known as “Juvenile Pilocytic Astrocytoma (JPA).” This is a tumor in the Pediatric Low Grade Astrocytoma (PLGA) family for which there is no known cure or easy treatment plan despite the fact that it is the most common form of solid tumor deaths in children. The diagnosis was devastating enough. Then we learned that a perpetual lack of funding in the cancer research field for these tumors severely dampened researcher interest in the disease. Existing treatment options are bleak. With no cure available and no new research in the pipeline, our hopes and dreams for our little girl, and thousands like her, were grim. It is for this sole purpose that we created the Pediatric Low Grade Astrocytoma Foundation – FightPLGA. Our mission is simple: to raise funds dedicated exclusively to PLGA research. We hope to find gentler, less poisonous, and less invasive treatments that will lead to a cure for children suffering from these brain tumors within the next five years. In May of 2006, over 25 researchers from around the world attended the first-ever scientific workshop committed entirely to JPAs and related tumors. Since then, we have funded 10 focused research grants as well as the creation of a multi-year Pediatric Low Grade Astrocytoma program through the Dana Farber Cancer Institute – a leading cancer research center – focused on this disease. In early 2007, our friends at The Endurance Trust reached out to us with Ben’s Story, an 8 year old boy, fighting JPA, much like my daughter. Joining with Ben’s family and doctors, Endurance Trust, wants to help change the course of this disease and help enable Ben to live a ‘normal’ childhood. These friends will not only be raising funds for cutting-edge PLGA/JPA research but will also help increase awarenessof PLGA, an ‘orphan disease’ through some extraordinary efforts in races around the world. While we have successfully leveraged time, energy, and money to achieve great things, there is still much more to do. Put simply, we are in a race against time to fund cutting-edge research that will lead to new treatment alternatives for all children suffering from PLGA. Please support Endurance Trust in their efforts to help our kids – as they race, they join us in our race for a cure and our children’s race against time. With funds there will be research. With research there will be a solution. With a solution our children can once again fight for their dreams instead of their lives. With hope, Andrew Janower President